Monday, September 22, 2008

Video of Gracie trying to eat some rice cereal



I thought I would post a video of me attempting to feed Gracie some rice cereal (with some encouragement from Callie). I originally mixed her cereal with her Pregestimil formula and she did NOT like it. The Kids On The Move speech therapist told me that I could try mixing it with apple juice so that's what I did. She liked it a little more but as you can see, she still does not love it. She usually starts to whimper and cry when she figures out it is 'eating time'. Sometimes she will gag and throw up. It is pretty frustrating because she is really not improving at all. I don't know what that means for her exactly. I wonder how long they will let her go with an NG tube before ordering G-tube surgery. I know my cardiologist doesn't want her to have a G-tube so we'll have to see.


Gracie was 6 months old on 9-20-08. Here is my last ditch attempt at night to get a quick photo of her before the day was over. I can't believe it's been 6 months. It feels like 6 years. We love having her in our home. The kids are having so much fun with her. She is getting more and more playful and really lights up around them.

I wanted to remember a few of Gracie's traits at 6 months:

--finally can hold head up pretty good

--LOVES her swing

--likes to watch TV, especially Dora the Explorer

--likes to chew on her toy rings

--still likes to be put down on her back

--sleeps about 12 hours at night

--latest home sat's have been in the low 80's

--have not had to be re-admitted to PCMC, 3 1/2 months now!!!!!! (knock on wood)

--likes to ride in the car

--likes walks and to be outside

--LOVES her brothers, and sister too on occasion

--starting to look a little more like her dad

--whimpers, laughs, coughs and grunts for attention

--smiles and turns her head in shyness

--throws up 1-3 times a day and is taking 60ml every other hour and 25 ml through the night

--likes being babysat by her grandparents

--cries hysterically when she is tired and wants to be laid down

--tries rice cereal about once a day for 10-15 minutes

--likes her bath and splashing

--is just now starting to kind of roll onto her side

Half way to one year! We love our Gracie Girl!

12 comments:

SuperCoolMom said...

My 3 yo was sitting on my lap as I watched the video, "Hey Who's that?" - That's baby Gracie. "I love Baby Gracie!" "She is eating." "I don't think she likes her food." "Hey, Let's watch my baby Gracie again!"

We've been praying for you for a long time :) Glad to see she's doing so well!

susan said...

Happy birthday to your little sweetheart!

♥Stef said...

Oh, poor little GG. I would take her not eating over a life flight trip to PCMC any day! She can't be totally perfect, that would make life just too easy, right?

Stephanie said...

Very cute! I love Callie's encouragement in the background too! Keep up all your hard work, Gracie looks great!

jen said...

Keaton just walked in and saw me watching this and said, "ahhhh look at da baby so cute". When it turned off he said, "mom, turn on da baby".

Leslie said...

You may not think there's not much improvement, but since I don't see her everyday I'm amazed. She opens her mouth and actually swallows. She may not like it much yet, but tiny baby steps are happening! It's so great that you jotted down all of her 6 month milestones and memories. Love that little one so much! Happy 6 months Gracie!

The Simmons Family said...

Happy 6 mo Birthday Gracie! She is eating a bit better than Owen with the rice cereal. He was ONE bite and then lips sealed shut. Has she tried biter bisquits or the Arrowroot cookies? Owen LOVES to feed himself solids. He still can't form a bolus and swallow but it keeps him interested.

We have therapy 3 times a week and still he's not eating. YOu're doing great. We also have the GTube debate, but our GI doc keeps telling us to work on feeds with the NG.

Prayers and Hopes for better eating! And CONGRATS on 3months with no hospitals!

Andrea

Em said...

Wow, six months. What an amazing milestone. Happy six-month birthday Gracie and here's to many more full birthdays! The Gracie girls are something!
Heart hugs,
Emily

Grammy Staffy said...

Happy six months Gracie girl....now lets get that eating thing down... we are all pulling for you sweetheart...and for your family

Brian and Kristin Barlow said...

she's getting SO big and so cute!! Congrats on 6 months!! I look forward to her one year birthday!!

Matchbox Mom said...

Good girl, Gracie!! Keep tryin! We love you and your beautiful smile. Thanks for brightening our lives.

The Petersons

Steve and Steph said...

It's been awhile since I've checked this blog...and tears are streaming down my face as they usually do when I read about your miracle baby! What a cutie pie she has turned into! Your family photos are gorgeous! Congrats to Gracie girl for 6 amazing months!