It's June and We're Still Here!

Gracie moved up to the third floor yesterday. My mom and Gary slept overnight with her and they said she did really well. She slept the whole night through except for waking up just a little bit when the nurses came in to bug her. She is being fed every three hours for an hour. She has thrown up three times today so far. She seems to do it about half way into her feeding. I asked the nurse what we do at home for feeds during the night (wondering if I could put her on a continuous feed), she was not sure. I was getting anxiety thinking about doing feedings during the night. So the feeding schedule looks like this: you have to hook the new syringe of food up at the beginning of the 3 hours, then the food slowly moves through the tube over the course of an hour. (You could attempt sleep at this point but often times Gracie throws up and you have to deal with that) At the end of the hour you have to flush the line with saline so it does not clog. Then, hopefully you could fall immediately back to sleep because you have to repeat the process two hours after that!! Yikes!! I can now see what some of our other heart friends were talking about---feedings may be the hardest part yet! Anyway, the doctors and nurses are very pleased with her progress. Our nurse Linda said that Gracie just amazes her every step of the way. She has defied all the odds and is truly our little miracle baby. They said that we may go home mid-week sometime. I think this will be great!! The kids are so excited to have their little sister home and to get to know her. They were all here at the hospital today and while I was holding her she just sat and stared at all three of them, taking it all in. I'm glad she is used to being bugged all the time here because that will definitely continue at home with her siblings!!