Saturday, March 29, 2008
All Went Well
The surgeons are done cleaning Gracie's chest out. It went well and they did not see anything that concerned them. They noticed some extra fluid in her abdomen and put a PD Cath in her to help it drain. (I knew her abdomen was getting swollen, I asked the nurses about it 4 times in the last few days) So this will be good. It will help the swelling in her heart go down as well. Dr. Hawkins said he has a gut feeling that she will come off the ECMO when they trial her tomorrow. So more prayers for Gracie and we will cross our fingers that she will come off the ECMO tomorrow!!! Thank you so much.
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18 comments:
So good to hear the good news! We are still thinking and praying for your family and especially sweet little Gracie.
We will continue to pray that all will go well so that she can come off the ECMO machine. I know it is hard to see other HLHS babies pass away and not worry about your little ones, but we just have to continue with the hope that although the road is hard, Gracie is a fighter!Dr. Hawkins is a smart man! You are really getting the best of the best. Keep it up!
We are so excited!!! Trust your mommy instincts. That is how we found Kaidence's heart failure and it has possibly saved her life many times. You have been given this gift of "mothers intuition" to protect our child. Don't be afraid to speak up. They would do the same if they were in our shoes. We are so happy that things are looking up. Do you need anything? I am at PCMC mondays and Thursdays for Cardiology. I would love to come and see you but Kaidence's immune system is too supressed to go around people. I could bring you anything you need. We spent 4 months straight in the PICU and about 2 months off and on prior to that. We know that things get hard living around all of the sick kiddos 24/7. It emotionally takes its toll. Let me know. You are in our prayers!
With Hope and Love,
Kaidence's Mommy
Shauntelle
I was praying for Gracie today right at 8:00 as I knew the doctors would be working on her then. I'm so happy to hear that all went well and that they found the reason for her swollen tummy. I'm sure that must have been frustrating for you Michele as you knew something wasn't right there. We'll be fasting for her tomorrow and pray that she is able to come off the ECMO. If all goes well, I hope to be able to come see her this coming week if that's ok. I look forward to your posts and am so thankful that you have shared this experience with all of us. WE LOVE YOU ALL SO MUCH!!!!
Leslie
Tom and Michelle - so sorry we haven't posted yet..... I'm still figuring out this blog thing - hopefully this works. Our thoughts and prayers are with you every day!!! We went to the temple last night and all I could think about was you guys!!! WE LOVE YOU SO SO much and can't wait to come see that sweet baby - she is beautiful (just like the rest of your clan). Sounds like things are looking up - we will see you soon. Love you lots,
Smith family
My sister's little girl, Gracey is at PCMC right now as well with HLHS... she wasn't a candidate for the Norwood and just had a hybrid done. Whenever I pray for her little girl, I pray for the "Gracey's"...I will be praying that she can come off and that everything goes well. My thoughts and prayers are with these little girls all the time.
That is great news!! i love the updates and watch my computer all the time to check on Gracie. She is beautiful and i am sure she is surrounded by angels right now. Our fast tomorrow will be directed towards her. I pray that tomorrow will be a great day!
Yeah!!!! So glad to hear!!!
I am so so happy for you. Gracie is a strong little girl! I'm sure she'll exceed limitations her whole life!
Toma and Michele- you've got me hooked on checking your blog about 8 times a day. Gracie seems strong and doing well. how are you two holding up? I am back in town and want to help. Can I take your kids out for pizza on Mnday? is there a better activity they would like? How is Grandpa holding up? call or email me.. your faith is an example to all of us. Kendall
That sounds like as good of news that you can have at this point. I went to the temple today and put all of your names on the prayer roll and of course prayed for you as well. We love you!
I will fast for your little Gracie tomorrow. I remember how much it meant to my family when people fasted and prayed for my son when he was so critical...even though these people did not even know my family. I know that we have never met, but being a mother of a sweet heart baby I truly feel your pain. Here is a link to a talk that I read over and over while we were in the PICU waiting for my sons heart:
http://lds.org/conference/talk/
display/0,5232,23-1-479-6,00.htm
You are in our constant prayers!
-Kim Scadlock
scadlock.blogspot.com
Our prayers and thoughts are with you...
I have been so touched this week as I've followed baby Gracie's journey. Thank you so much for sharing this with us! I am so impressed with your faith and strength, even though I can't begin to imagine how difficult this must be for you. Sweet Gracie and your family are in our prayers! Love, Annalise
Tom and Michele, We just returned from our spring break trip and the first thing I did was to check your blog. I've thought about you so much over the last week. Your beautiful little Gracie and your family are such an inspiration to me of faithfulness and love. I love all the memories we have of all of you. We will continue to keep you in our prayers. Love you so much, Susan and family
Tom and Michelle,
Stef has been keeping me informed about your Gracie for a while now and my heart goes out to you and your family. My "hospital experience" with my son Zach was very brief, but every minute was heartwrenching and I can only imagine what you must be going through day after day. Your faith and positve attitude through this is inspiring. I appreciated the kind words you sent me when I lost Zach last month. I have all the hope in the world for your sweet little girl. If I have learned anything through my trial, it's that Heavenly Father is so very aware of us and can sustain us through anything. Even with our sorrows, there is need to despair. Keeping your thoughts positive will allow you to feel the prayers of others and the peace from the Lord. You're doing great and I will continue to pray for Gracie and your family.
Love,
Gillian Ashton
That is such good news!!! Woo hoo!!
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