Gracie's heart cath is scheduled for 3:30 tomorrow afternoon. We have to be there by 2:00. They will keep her there until her surgery Thursday morning. She gets to have her regular milk until 12:30p.m. and then only Pedialyte until her cath.
Thanks to everybody for the diaper rash remedies. I actually had to take a stool sample in to the hospital to check and see if she had a bacteria called C-Diff. Luckily, she tested negative. Yay! That would've complicated her surgery a bit if she were on antibiotics for another issue! Through fasting, prayer and a priesthood blessing, Gracie has done really well the last few days. She tested negative for C-diff, her diaper rash is getting A LOT better and her cough is going away.
For all of you who had diaper rash remedies, here is the information I got from the wound care team at Primary Childrens Hospital:
1. Clean bottom as good as you can.
2. Apply ostomy powder (this is a loose powder that comes in a little bottle that squirts out the top)
3. Pack powder onto bottom with Cavilon square (pre-packaged squares soaked in a liquid)
4. Repeat steps 2 and 3, two more times to form a crust.
5. Apply thin layer of Criticaid cream (www.sweenstore.com)
This process has seemed to work pretty good. Whenever a baby has a diaper rash and is having 10+ messy diapers a day, it is really important to find out what is going on on the inside before treating what is going on on the outside. Whatever she had, it lasted for about two weeks and then we finally got on top of it. I am a believer in the probiotics (Culterelle) as well.
We appreciate all the love and support that has once again come our way. We are nervous for what lies ahead but are hopeful that we will have a good outcome. Please pray for our Gracie Girl. She will need all the help she can get the next few days!! I will post again tomorrow.
11 comments:
Michele,
So glad to hear Gracie is in business. It doesn't look like our paths will cross tomorrow. OUr appt is at 9am. I have something for you and will try to catch up with you/leave it with PICU for you once Gracie has the Glenn behind her and is on the mend. She's going to do great. Deep breaths and lots of prayers.
Much love,
Mindi and McKay
We'll be praying all week for little Gracie. All our love!!
Good luck with everything this week! I am so glad to hear her diaper rash cleared and her cough is better. Hopefully she will be able to glide right through her surgeries this week. She is a very tough little girl! Our prayers are with you!!! I will watch your blog faithfully for updates. Good luck Gracie girl.
Natalie and family
So glad to hear that the rash is getting better. Had to have been miserable for everyone! Prayer prayer, and more prayer has been ordered up for your whole family. I am looking foward to wonderful outcome. God bless!
We are praying for Gracie girl to have a smooth cath with no surprises and that her surgery goes beautifully. We'll be thinking of you today... cath day! :)
Andrea
The prayers have never stopped and they will just get a little (a lot!) stronger now. We all know what a strong, amazing little fighter your baby girl is so just hang in there.
You can count on nonstop good thoughts and lot's of prayers coming from us these next few days. We love you and pray for Gracie's miracles to continue.
Lots of love,
Leslie and fam
So glad she's getting better going into her surgery. We'll be praying for Gracie and your family. I hope it goes well this time around.
Gracie is a tough girl and a fighter!
Love, Kim
We are still praying for your sweet Gracie. What a precious little girl she is. I was telling Jackson about Gracie's next surgery and he was really quiet for a minute and I could tell he was really worried. Then he said, "Well, we better start praying for her at least 2 times a day now, maybe 3. That will probably help her a lot." He worries over her often and I cannot wait to tell him that her surgery is over and she is doing great.
You are in our thoughts and prayers!
I hope that the surgery goes smoothly and that before you know it, she will be back home. She is such a sweet, special little girl.
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