Pretty Quiet Here

I called my sil last night and asked her to make a collage of pictures that I could blow up to a 12x18 at Costco and put on Gracie's crib as her name tag. This is what she created. It is SO cute and fits perfectly on the headboard of her 'big girl' crib here. I like to have pictures on her crib so that the medical personnel look past thinking of her as one of the many kids here who is only a body with tubes. I want to convey to them, even though it is through pictures, that she is important and loved and should be treated extra special!! Thank you Tiffany.

Life here today is a little too reminiscent of the good ol' days. Gracie sleeping with tons of tubes and wires and my husband and I sitting here hour after hour, attending to her while she is awake and reading or working on the computer when she is asleep. I think I've said it in some of my older posts but it's kind of like Groundhog Day here. You loose track of what day it is, what time it is and if you're here long enough, even what season it is.

Gracie is doing a lot better today. Her heart rate, saturation levels, blood pressure and blood tests have all been good. She was pretty agitated all morning long due to pain and the breathing tube being down her throat. They gave her several doses of different pain medications and nothing seemed to work. They gave her a different kind in the early afternoon and it finally kicked in to where she could calm down and sleep. But this morning was rough because she would look at me and I could tell she was just SO upset and I couldn't do anything for her but rub her head and reassure her that we were doing everything we could for her. She is such a brave, feisty, little fighter!!

They are hoping to take the breathing tube out tomorrow. I really, really hope that happens. She is unbelievably agitated with that down her throat. When she's awake, it seems like she is just constantly choking on it. If she gets extubated tomorrow, I think she will have a much better day and then I will be able to hold her! Because it's Sunday, there are not many doctors working so we should know more tomorrow or Tuesday what the real plan is for her.

Thanks for all of your prayers, they seem to be working because she has had a much better day!