Sunday, February 22, 2009
Update #14
Dr. K came in and talked to us for quite a while. He expressed his disappointment that this has happened. He does not know why. He said he knew something was wrong right away when he unclamped the lines that went to the heart and it did not respond like a healthy heart. He said it could've been a problem with the transplant but he does not think so. He said it could be her body rejecting the heart, we will find out when we run the cross match on the blood. He thinks we may have gotten a bad heart, he just doesn't know right now. He said 'this is not what Gracie needs'. We have to hope that her heart will recover with rest. She could be on ECMO anywhere from 5-7 days. I don't know how my posts are coming across, but this is very serious and obviously NOT good news. I just wanted to clarify that. We have not given up hope, but the odds are against us again. We should be able to go see her in about 20 minutes. We will pray for another miracle and if the Lord has it in store for her, he will grant us another miracle.
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69 comments:
I will pray for a miracle too, for you Gracie girl! Hopefully her new heart just needs a little rest! Hang in there! My prayers are for you and your family too!
We're praying for you all. Especially for another Gracie Miracle.
We are praying for your family and little Gracie.
I pray for the Comforter to be with you and your sweet family. We have come to love Gracie and have prayed many prayers for her and her heart after learning about her through McKay's blog. Today we join you in asking for miracles and hope you feel the strength of strangers that care.
We used to be in Kate's (Wiser) ward and have been following Gracie's progress from the start. Our family is praying our hearts out for little Gracie & her special heart, and that you and your family will have the comfort & calm you need to make it through this difficult trial. You are an inspiration to all of us mothers and Gracie has made us love on our babies even more. We pray for your miracle to come.
This is so not the way I was hoping this was going to turn out. Your posts are coming across as very serious, but it is so hard to imagine Gracie not pulling through. She has done it so many times before and I just know if there is a miracle to be had, she will find it. We will continue to pray for her and your entire family. Even with all the she is facing I just know she can do it. She is so amazing, as are you and Tom!
I remember reading Gracie's blog back in the "beginning" and you were so sure that you were going to lose her... and she surprised everyone and pulled through. We can only hope and pray that she will do so again if it is her plan. It is so very difficult... in fact, I'd venture to say IMPOSSIBLE, in the midst of the trial to see the greater plan... but this is ALL part of that bigger picture. I KNOW that is not a lot of comfort right now. But on the other side of such a trial, I have to keep sharing my testimony that it is true and I know you will be carried through this to the other side as well. As for Gracie, rest assured that angels are attending to her and she is so very close to her Father in Heaven. She will fight if that is what He wants her to do. Be strong... our family is with you in spirit and praying constantly for Gracie.
Thank you so much for your blog and sharing your little fighter with all of us. She is truly an inspriation and her/your story is truly a testmiony builder. So many of us are praying for you, your family and beautiful little Gracie. May you have the comfort of the Holy Ghost and feel the love of our Heavenly Father during this difficult time.
Praying for all of you.
Praying so hard for your family tonight. Gracie is a fighter!
We are praying for you Gracie Girl! Keep Fighting!
Love,
Kerri Pennington
Thank you for keeping us all up-dated. We have been checking your blog all day. Please know that all of her cousins here in Connecticut love you all and we are adding our prayers to yours. love Joe, Chrissi and kids
I don't think that I have ever spent as much time on my computer as I have today. We continue to pray and have faith that the gift of one baby's heart will beat strong in anothers.
Thank you for keeping us all updated. We will of course continue to pray for Gracie and hope for another miracle. I hope you can feel our love for you!!!!
Have been beseeching the Lord with you all day. We have seen Him work miracles and are praying that she will live to be a testimony to the healing power of the Lord...that she will bring glory to her Creator...praying that the arms of our father will reach where ours cannot and enfold you in comfort. We love your Gracie girl so and are praying for this heart to be strong!!!
The pain and tears I share with you
are of not much help to little Gracie, but I want you to know that even though I do not know you, I have a special place in my heart for your sweet little girl and her fighting story. I am so saddened she has to go through this and I am praying for her and for her sweet mother and whole family for all the strength you need.
May God grant Gracie the miracle she needs now.
I linked from Kaidence's blog. My thoughts and prayers are with you at this trying time for your family. I will pray for you miracle. May God be with you
Becky Wertz
When God closes a door, he always opens a window. Keep the faith.
We are so worried. We had another family prayer for you tonight. If it was a bad heart, can she go back on the list? Is it possible she can do it again? Is it possible that it will recover with rest? I hate to ask these questions, but it is what my mind is filled with. Please know we are thinking of you and are praying so hard for you.
YOUR SWEET LITTLE GRACIE GIRL IS SUCH A FIGHTER! WE HAVE WATCHED YOUR BLOG ALL DAY AND WILL CONTINUE TO PRAY FOR A MIRACLE.
STAY STRONG SHE'S IN GOOD HANDS!
SHALYSE(KAIDENCE'S AUNT)
We will pray with all we have tonight that things will work out according to the Lords plan. We can't begin to imagine the amount of emotions that you are experiencing right now, but we hope that you know how loved you guys are, how loved Gracie is and how grateful we are that you have allowed all of us to fall in love with Gracie, her and your family have touched so many lives!!!!!
We are praying for a miracle for Gracie.
Alan & Kristi
IHH family
Praying so very hard
What a day for your family and your sweet Gracie. Someone at church came up to me with the great news that Gracie had gotten a heart!! I was so overjoyed! So I rushed home to read for myself and see how everything was going.. I'm so sorry for this recent news.. I cannot begin to imagine what the last 24 hours have been like for you. All we can tell you is that we'll be praying all night along with everyone else for another miracle for your sweetheart. She must be one amazing little girl..
Gracie's life has been a miracle from the start...We're still praying for G.G. and your whole family.
Love, Kim
I have been secretly following your blog from the very begining and have grown to think that I know your family and little Gracie on a personal level. Your family has been blessed with a very beautiful and special little spirit. Please know that Gracie and your family will be in our thoughts and prayers. Thank you so much for allowing Gracie to be a part of our family, her spirit is strong and she has touched many people.
Michele,
I'm just aching for you all right now...what a day this has been filled with so many emotions. Thanks for updating and our hearts and thoughts go out to you. Praying and hoping for sweet Gracie Girl!
Sending my thoughts and prayers your way....
Your sweet baby is in my prayers tonight. God bless Grace and her family.
I have been gone all afternoon but my sister called me with updates. My heart breaks for you. We are all praying for you to get another miracle. I know that things are overwhelming for you but I am curious if she could be a canidate for the "Berlin Heart". I know that it has been used to let the heart rest and recover in some of the studies I read when we were preparing for Kaidence. My thoughts are with you and I know that the Lord will continue to guide your family. I pray that you may feel our Heavenly Fathers loving arms around you.
my husband and i are praying for little gracie to pull through. miracles have happened since the beginning with this sweet angel and they will keep happening!
We are saying prayers for you all!! If she got a bad heart will they be able to relist her??
I am so so so so sorry. I will pray for another miracle.
We're praying for Gracie girl here too, our hearts go out to your whole family.
Oh no. What a roller coaster for you guys. Our tears are rolling tonight and our prayers will continue for little Gracie.
like the other 32 people and iam sure many more I am praying for you I have been following Grace her whole life thanks for sharing her.
Your blogs are coming across just fine. We are all praying our HEARTS out. Oh Gracie! You keep on fighting sweetheart!
Michele- we are full of hope! You hang in there. And whisper a little cheer to Gracie from Brad, Emily, and girls. We love you.
I just don't even know what to say. But I wanted you to know that our family is here doing what we can in the form of prayers and love. This is definitely the scariest roller coaster ride of my life and I really want off of it soon. Sweet Gracie...I know that she is fighting as hard as she can right now. She is in the best care in the world. We have to just keep up our faith that miracles can continue to bless her life. Please know that you have a sold out stadium of people praying for Gracie and sharing in your worries right now. We love you so much. Let me know if you need any help at home with the kids so your family can be up with you...anytime day or night, I'll make it work.
Leslie
I just know she's got another miracle in her...
We are ALL praying...
I have read Gracie Girl's story from the beginning, and although I have never commented before, I just have to tonight.
I have fallen in love with your sweet Gracie, and have been on pins and needles waiting for updates.
I am praying and hoping for a miracle! I can not help but feel, that Gracie can pull through this!
Heavenly Father is mindful of your family and of Gracie. He hears our prayers and knows the desires of Gracie's HEART!
Keep fighting Gracie! You can do it!!
With prayer and hope,
April-another mom
Friends of baby Bela down in AZ praying for Ms. Gracie tonight!!! What a roller coaster you all have been on. Even though we don't know you or Gracie, we love her and hope for another miracle for this sweet little girl.
let's hope she make's it she's in the blackham's prayers
Linked to you through MC Pennington's blog. Have been praying for your sweet girl Gracie.
JT in SC
I have been watching your blog for months. My heart is breaking with this news, and for your family.
Prayers are being said in your behalf.
Much love,
Evonne
I'm just checking in one more time before I go to bed. We are thinking of your family during this unbelievably difficult time.
*praying... through the night Gracie*
Praying constantly for little Gracie. Wish the news were better, but hoping that she can pull through.
All my prayers are with you guys tonight.
Thank you for blessing our lives with your sweet Gracie. We will continue to pray for another wonderful miracle to bless you and your little girl. Even though I have only gotten to know Gracie through Kaidence, she will always have a special place in my heart.
Little Gracie has captured the hearts of so many people who have never met her- including ours. I have had many phone calls today from people wondering if I'd heard the latest news of Gracie- all strangers to you as well. So many people are praying for her and for your family. I hope that you will all be comforted through this very difficult time.
Gracie was blessed to be born to such a wonderful, faithful, loving family, and I'm sure she fight to stay if that is part of Heavenly Father's plan for her.
Love,
Robbie
Just know there are legions seen and unseen supporting you through anything and everything that is to come. Gracie has always liked to come through with a dramatic and happy ending--we're praying like crazy that she continues to follow suit.
So much love and hope to you tonight.
Mindi and McKay
Again, speechless...praying for a Gracie miracle
Michelle and Tom please know how much we care and are so so sorry for this tough news. My eyes are full of tears just imagining how your hearts ache right now! May the Lord bring good news in the morning to your special family. She WILL continue to fight!!!!
Michelle and Tom please know how much we care and are so so sorry for this tough news. My eyes are full of tears just imagining how your hearts ache right now! May the Lord bring good news in the morning to your special family. She WILL continue to fight!!!!
I am just now seeing your blog and Gracie's story for the first time. I am fervently praying for a miracle tonight and will ask others to as well. May God hold you in His arms right now and may you find comfort and healing there.
Angel
I just wanted you to know that more 'strangers' have joined their faith with yours, in praying for another miracle for your precious baby. I pray that the Lord will sustain you and comfort you during this very difficult trial. We will keep hoping and praying!
Hi, I'm Heather Cardall, Susan Palmer's niece and Paul Cardall's sister in-law. Susan told me about Gracie and your blog. I am praying for her and your family!
What a roller coaster of a day for emotions! Like others have said, Gracie is in the best possible hands. She is so near to Heavenly Father. She has amazed us tremendously throughout her life and lets just hope that she has one more huge surprise in store for us all! Hang in their Gledhill's and as all of your friends, far and near, strangers or not, continue to pray for you and your sweet baby, I just KNOW things will work out. Keep fighting Gracie, please. We love you!
I couldn't be more sorry that you have to face Gracie in the PICU on ECMO again. It's hard to see how all this is fair. Gracie has stumbled every step of the way, but has always gotten up. I hope she has one more fight left in her. I would love to see her pink, smiling, growing, and happy. Whether that happens, is up to our Heavenly Father and Gracie.
Our prayers are always with you, Tom and Gracie.
You are in our thoughts constantly. Hang in there - you all are so strong.
Gracie is a very lucky girl to have you for a mom, Micelle. Even when you were a young girl, I thought you were a person of great strength. You have been so brave and resiliant through Gracie's challenges. You have been amazing.
I can't imagine what you are going through right now. Know that I care, and my thoughts are with you.
I can't get Gracie off my mind. She is in my constant thoughts (as are all of you!). There is nothing I haven't said already, but please know we are still praying for a miracle. And we want you to know how much we love you and care about you. Gracie was given such strong parents for a reason - I pray that you have the strength you need right now.
We are praying for you baby gracie. Good luck. the dance famoly
I just want to let you know, we are all praying for your family here at the Pettit household.
We have been praying for gracie since we heard of her transplant, know we are still praying and sharing your faith!! Hugs to you and your sweet family!!xoxo
Lyndsie McMullin
(Tiffany's friend)
You do not know me, but I have been praying all day and will continue to pray for sweet Gracie. She's such a fighter. I'll continue to pray for a miracle.
Bless your hearts! I am praying for this sweet baby girl. Gracie is an absolute doll and I have faith she will pull through this stronger than ever. I am continuously praying for baby Gracie.
God Bless you and that sweet baby girl! From one heart mom to another!
Have been thinking of you all night and wanted to check in one last time before I head to bed. I know Gracie is a fighter and will do all she can to bring us all another miracle. I know so many people are praying for her and for your family tonight. Please know our prayers are among them. We love you Gracie - keep fighting!
My thoughts and prayers are with you. I have been so touched by your story and like many others feel as if I have come to know you and Gracie personally over the past 11 months. May peace be with you and your family this night and always.
We are praying so hard for Gracie and your family. I've sent a prayer request out to all my prayer warriors. God is the ultimate physician.
Warmest Wishes and Blessings,
Wendi Hundley
Mom to Luke - TGA, VSD
http://babyluke.wordpress.com
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