Friday, April 4, 2008
Delays
Ok, I'm not sure how much more I can take of this! I got here this morning and Gracie's x-rays came back and showed that her left lung and the top of her right lung were full with secretions again. They will have to do another 'bronch' this morning like they did a few days ago. Only last time they did a bronch they wanted to wait 24 hours before trialing her off the ECMO. It looks like everybody right now is waiting for someone higher up to give them direction as to what is going to happen today. In any case, this will definately delay the 12:00 time frame. I will keep you posted.
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9 comments:
I just had to post a comment. I'm an old, old friend of Stephanie and Dave Adair. They sent me your blog link. My son was on ECMO down here in Arizona a year ago. I know a lot of what you are going through, and your pictures are so familiar. I so wish I had a blog back then. I kept very little history on it all, and believe it or not it's all hard to recall now. I thought I would never forget the details, but they are slipping away. My mistake. I'm so glad you are blogging it all! Great idea!
Well in that case since they are doing a "bronch" I'll do a brunch consisting of diet coke and chocolate! Seriously I hope people aren't offended I'm making a joke. I know they are just trying to make sure she is in the best condition possible... which is good. I can't imagine the anxiety you are feeling. Before and after my brunch I'll say a few more prayers! Obviously today I'm not fasting! Love you guys.
Oh my gosh, I can't believe you have to do some more waiting! Just when you think the waiting is over, it's wait some more. I'm so sorry! We'll be hoping that a decision is made quickly and that you can get through this very emotional day!
Tom and Michele
Know that our thjoughts and prayer's are with you today.Our Father in Heaven iswatching over our Gracie and His Wil be done. May he comfort you and sustain you this day and the days to come
Love
Grandpa Gledhill
I am so sorry. The not knowing is so hard and unfortunatly such a common part of the PICU. I often felt like I might start to go a little crazy. These are life changing situations and it is so hard to WAIT. The more they put stuff off the more the stess builds inside of you. At least they are giving Gracie every chance possible. I know that with Kaidence we had these things come up all of the time and now that I can look back I am starting to see that the Lord truly did have his hands in ALL things(even the things that did not seem like a blessing at the time). Sometimes the docs wanted to do something for Kaidence that was clearly not what the lord wanted so he would have to throw the docs a curve ball. I look back now and know that these curve balls, as frusterating as they were, was the Lord taking charge. Suddenly something would appear on labs, x-ray or kaidence would spike a temperature for some unknown reason and the docs would have to change their plans. I think it was the lords way of putting a hold on things and saying "just slow down a little, I need more time."
We are praying for you. Not only is the Lord watching over Gracie, He is watching over you as well.
With Hope and Love,
Shauntelle
kaidence's Mommy
I can't imagine what you're going through right now. I'm going to the temple now and I'm keeping all of you in my thoughts.
Love you,
Winnie
This morning as I was putting Allison's lunch in her sack, I pulled out a marker to write her name on it and wrote "Mich" before I realized that her name is Allison, not Michele. I just have you all in ingrained in my brain so much that I can't even think straight! Jake asked me to text him at school today the minute I got an update on Gracie. I know that the Lord has a plan for her and it will happen no matter what, but today I broke down and prayed so hard for a miracle if at all possible. Maybe this little setback is just what she needed to give her a few more hours or days for her heart to get stronger. I love Shauntelle's comment about her daughter's experience with this same thing. Hang in there! All will be well.
Leslie
Michele, I dont' know what to say except that part of my heart is with you today! Surely one of the greatest blessing of life is to be a mother because it competely expands our hearts; the downside is when all that love causes us so much pain, and I know how much your heart must hurt right now and how much you wish you could just comfort Gracie by holding her in your arms and never letting go. The good part is that our loving Heavenly Father knows that too and he will sustain you with his love. I find hope in what Shauntelle said, perhaps it is a blessing in disguise. Sending a big hug to you! Love, Lana
Michele -
I am so sorry for all the stress and worry you have to go through,(Tom also)I don't know how you keep going. We are praying and you are on my mind every moment. I am going to the temple today too! I will pray for you constantly while I am there.
Love,
cami
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