Friday, April 18, 2008

Out of Surgery

Gracie just got out of surgery. They said it went really well. They were gone for a little over two hours. It was hard to see her tonight though. I wasn't really prepared for how she looked. She has two drainage tubes coming out of the sides of her chest. Her face was a little puffy and reddish/purple which reminded me of when she came out of her Norwood surgery at 4 days old. They did do a muscle flap so the middle of her chest is raised and pulled tight. She has a bandage all the way down the incision again that will come off in the next couple of days. The tubes will also come out in the next couple of days. I guess we got spoiled with a few 'boring' days and tonight just reminds me of the harder days that I thought were over. I guess nothing is ever over in the ICU, things can change from moment to moment. The doctor said that the muscle flap will flatten out with time but it will be about a year. It's hard for me as a mother to see my daughter's chest look deformed and scarred. I just want all the 'big' issues to be over. We have had so many of them over the last 4 weeks, it's gets hard to handle sometimes. Hopefully this will be the last major thing they will have to do to her. Let's pray for that. Thanks again for all of your support.

19 comments:

Heart Mommy said...

I could take about 75 more boring days with Gracie... Even these so called little trips are hard. This muscle flap surgery is the same one they did with Alex because he was open for so long... It actually made his scar look awesome and so much better than what I've seen on some kids.. Just think... a little clevage for an infant... Okay we'll be praying for NO more major things...

Em said...

We continue to pray for you guys! I am sorry for the harder days, and will pray for some "BORING" days! It is hard as a mother to see the scars, especially the uglier looking ones. She had really come a long way. You guys are strong and know we are all still behind you!
Hugs,
Mike and Emily Gourley

Tiffany said...

Michele, I am so sorry you are having a hard night! Hopefully this will all be a distant memory soon! We will just focus on her cute face (and toes!) tomorrow instead of her not so cute scars. I hope this is the last big thing for a long while!

susan said...

Beautiful, strong little Gracie! It's always such a relief to hear that she's "out of surgery". I could go for no more major things. It's apparent to me where she gets her strength--from her amazing parents. Love you, Susan

shana said...

I can't imagine what you are going through. Hopefully she will recover soon and you can snuggle with your sweet baby and the hard days will be replaced with joy. We are thinking of you and praying for all of you!

♥Stef said...

It seems like the night brings a lot of worry for you. I am sure tomorrow will be a better day. Gracie is such a fighter, she wont let this get her down. This surgery gets her one step closer to coming home. She is on the road to recovery, you just have to keep that in mind. I know it must be very difficult to see your baby go through all of this. You get to carry that burden because she will remember none of it.
Gracie is the miracle baby of the PICU! She also has two more surgeries to correct her scar. She will look at that scar someday and realize all that she has been through and all that you did for her. Remember you chose surgery to give her a chance at life. She will thank you someday soon for giving her that chance.

jen said...

Thinking of you all and keeping you in our prayers!

Cami said...

We are still thinking and praying for you. Your family and your beautiful baby has given many of us a new perspective on life. Thank you for sharing this experience with us! I was thinking today that I hope I get to see Gracie someday and give her a kiss, thanking her for the lessons she has taught us in these past few weeks. Hang in there! You guys are amazing!

Julie said...

I am another friend or a friend of a friend - I check your blog daily to see how your little baby girl is doing. As a brand new mom of a baby girl myself I feel strongly for what you are going through. You would probably be suprised about how many people are rooting for you and your family!

Stephanie said...

Sorry to hear that Gracie needed another surgery. It is so hard to hand our heart kid's over for more surgeries. I thought you might appreciate this poem I wrote. One day at a time...we, as heart parents continue to hope...
We continue to keep Gracie in our prayers.

I have hope that someday...
When my child understands...
I'll sit him on my lap... and then...
He'll ask me of God's plans...
In my sweetest daydream...
He'll lift his shirt up high...
And ask mom am I different?
And then he'll ask me... why?
I'll get the chance to share with him...
The long journey before...
And tell him that he's very brave...
And God has plans in store...
I'll tell him of the battles...
That children like him face...
And how we must remember...
To always lean on grace.
That I have learned of courage...
Through the lives of those we've known...
And I am ever certain that...
We never walk alone.
That everyday's a miracle...
And life is to be treasured...
That hope and faith have brought us through...
And these things can't be measured.
That other's are in heaven now...
(Their live's tend to remind me)
That even when I run away...
Somehow...son...God will find me.
And when life seems too hard to bear...
(And signs become easy to miss)
Brave little souls seemed to whisper...
Have faith...you'll get through this...
Some might say...your heart's not strong...
And there are some things you'll just never do...
But...you can do most anything...
That you put your mind to.
I have hope that someday...
You'll do the same as me...
Your child will come running...then...
You'll set him on your knee...
And lift your shirt...for the hundredth time...
When your child says tell me again...
Tell me about your special heart...
And all of the the places you've been...
Tell me about the heart hero's...
The one's that they just couldn't save...
And how your mommy told you that...
They were so very brave.
I imagine that you'll smile then...
(As you smile all the time)
Then hold your child closely...
And say...Once upon a time...
Mother's can wish for such things...
They help the heart to cope...
Perhaps...it's even possible...
With faith and love and hope.

~Stephanie Husted(mommy to Braeden HLHS)www.carepages.com:babyhusted

Allysa said...

The poem above is absoulutely beautiful! It made me teary and made me think about all you have to go through as heart mommies. I couldn't imagine having to go through such a thing with my future son or daughter. I hope and pray that no matter what happens God has his hands on you but of course it would be awesome to have Gracie Girl around to tell her story to others.
Much Love and Many Prayers~
Allysa Barkdoll
thebarkdollfam.blogspot.com

Court and Britt said...

We are sorry to hear about all that your family & Gracie are still dealing with. You are AMAZING!! We hope that Gracie is home with you soon:).

Heather said...

I'm SO sorry! That would be SO hard to see the physical evidence of all the terrible things your sweet baby girl has had to endure so soon in life. But she is strong, or she wouldn't be here still. We will pray that this is the last major hurdle ya'll will have to endure for a long time! We love you even though we don't know you, and have been given so much from our brief association. Thanks again for sharing!

Brooke said...

Sweet little Gracie. That scar will always be a reminder to her of how tough she was through this whole thing. She will know what a fantastic family she has that helped her and was there for her every step of the way! We will pray for boring days and of one day going home with you guys! What a great day that will be!

SuperCoolMom said...

We're still praying for sweet little Gracie to keep getting stronger and that you'll be holding her and playing with her soon!

Matchbox Mom said...

Oh my! That poem is just amazing! We are still praying every day and every night for little Gracie. What a blessing that little girl is. I, too have hoped that one day i'll get to meet this miracle and kiss her little chubby cheeks. I love her more than you know, and admire your family so much!
Prayers are a'comin your way!!!

HUGS!!!

Teresa said...

I can't even imagine having to go through what you have Michelle. Seeing your Gracie's little body go through all it has in such a short time.
That poem was so beautiful. You heart mommies are something special.
Stay strong!
Lots of love,
Teresa in VA

Shari said...

Michele,
My heart was sad for you today to hear the frustration in your comments. I am so sorry you are having to go through so much-I hope you can see a small light at the end of the tunnel. I cannot imagine your daily life right now! You are a great mom and the Lord is certailnly watching over you right now! In the midst of the storm it is hard to think of the calm-but the calm will come when you will sit at home with your baby and rock her and kiss her!! Thinking of you always and praying for your comfort and of coarse for your sweet baby Gracie!!

Harry said...

Tom and Michelle,
I would imagine it is harder to see Gracie having a surgery now that before, since she has been improving so much. The constant stress at times must be overwhelming. But there is a great amount of strenth to draw from, both the Lord and those around you that care so much. It is okay to have those kind of days, so don't kick your self too much. Be strong in each other, lean on the Lord, and allow your self some "moments". God Bless.

Harry